I try very hard not to bemoan my circumstances, but every so often I wonder if anyone cares about our family. I often hear people in our family wonder aloud how do I handle this...how does she do it every day...she needs help...or just the proverbial -- that sucks! What is amazing to me is the amount of help that presents itself, which is almost nonexistent.
Raising small children is demanding both physically and emotionally. It drains parents of sleep and energy. Add a special needs child into the mix and the demands can be staggering.
I'm not saying that I don't love and enjoy my kids because I very much do, but it would be great, maybe once every few years, to get away for an overnight with my husband. Just so that we can remember that we do like each other and that we are still adult individuals with needs outside of our kids.
The divorce rate of parents of children with Autism is eighty percent! That is a HUGE number! I can see why.
Saturday, June 27, 2009
Friday, May 8, 2009
Saturday, April 11, 2009
Love...
I want to wish everyone a Happy Easter...and I'd like to thank Jesus for his ultimate sacrifice, and for showing me what true love really is...God Bless...
Saturday, March 21, 2009
No Excuse
While I don't offend easily, I must admit that President Obama has finally done it. His offhand comment comparing his bowling game to the Special Olympics callous and thoughtless. This man is the leader of our country, which includes people of all races, genders and yes...abilities. Perhaps Mr. Obama should consider that he is now a role model to many people, and in a position of great authority. Or, perhaps he should just stick to what he does best...speaking WITH teleprompters!
Tuesday, March 17, 2009
Monday, March 16, 2009
BLESSINGS...
I can't believe that our little man will be three tomorrow...I CLEARLY remember his tiny little face staring at mine, our introduction, if you will. I call him a true gift from God...he was a light in a very dark time for our family. God knew what we needed...and gave us a baby with a personality and temperment that fit into our family like a missing piece of a puzzle! What a blessing! God is good...we love you!
Monday, March 9, 2009
IEP...UGH...
It's that time of the year again...the time that all special needs parents dread...IEP season! IEP stands for Individual Education Plan. This is essentially the legal binding contract between a student receiving special education services (and their parent/guardian) and the school system. This document contains all special accomodations that are to be provided to the child by the school system.Seems pretty cut-and-dry, right. Not even close!
Unfortunately we discovered this the hard way this year. Ryan's IEP was developed with language that stated (in special ed lingo) among other things that Ryan should be provided with a one-on-one aid to help him navigate his day. We have been fighting for months to get him this service.
It has been frustrating and overwhelming at times to navigate all of the beurocracy in the school system...and unfortunately this seems to be the norm when dealing with these situations. It is unfair and frankly it just stinks for everyone!
We are not giving up and are optimistic that this will be resolved favorably and soon, but in the meantime, Ryan is the one who loses out. The thing that angers me most is that the school system seems to write-off kids like Ryan. They're never going to amount to anything anyway...right??? Wrong!
When we began this journey, Ryan had no verbal skills or social skills. He tantrumed constantly. Now he has language skills, and the ability to keep pace with his peers if he's just given a little extra help. What an amazing accomplishment...he's worked so hard!
I've never treated Ryan as disabled, and I don't use that word in this house. Ryan is treated as a typical child who has all the potential in the world...and no school system will ever stand in his way!!!!!!!!!!!
Unfortunately we discovered this the hard way this year. Ryan's IEP was developed with language that stated (in special ed lingo) among other things that Ryan should be provided with a one-on-one aid to help him navigate his day. We have been fighting for months to get him this service.
It has been frustrating and overwhelming at times to navigate all of the beurocracy in the school system...and unfortunately this seems to be the norm when dealing with these situations. It is unfair and frankly it just stinks for everyone!
We are not giving up and are optimistic that this will be resolved favorably and soon, but in the meantime, Ryan is the one who loses out. The thing that angers me most is that the school system seems to write-off kids like Ryan. They're never going to amount to anything anyway...right??? Wrong!
When we began this journey, Ryan had no verbal skills or social skills. He tantrumed constantly. Now he has language skills, and the ability to keep pace with his peers if he's just given a little extra help. What an amazing accomplishment...he's worked so hard!
I've never treated Ryan as disabled, and I don't use that word in this house. Ryan is treated as a typical child who has all the potential in the world...and no school system will ever stand in his way!!!!!!!!!!!
Monday, January 19, 2009
Thursday, January 15, 2009
Friday, January 9, 2009
Remembering Jack
John McCulloch passed away yesterday. Aside from being Cole's grandfather, Jack was also a wonderful person. He was all of the things that most people are not anymore -- a true gentleman in every sense of the word. He was kind, considerate, and incredibly generous in many ways. He loved Cole and the kids and (I hope) me:)...and the feeling was mutual. Rest in peace, my dear friend, and I look forward to seeing you again someday...
Friday, January 2, 2009
A New Year
I am generally against making New Year's resolutions; however, this year I'm making an exception. I really want to live by the mantra "Less is More." It is my goal to spend less, have less and enjoy the simple things in life MORE!
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